Revolutionary juvenile arthritis treatment rationed owing to under-funding


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A new drug called Enbrel can make a dramatic difference to the lives of young rheumatoid arthritis sufferers. However, thanks to the so-called ‘NHS postcode lottery’ it may never reach those who need it the most.

Enbrel works by working on one specific molecule known to cause joint inflammation and, consequently, arthritis. However, because it costs the NHS eight thousand pounds a year, only a small percentage of the 14,5000 children suffering from arthritis in the UK will ever get to benefit from it. Whether someone obtains treatment is currently dictated by where they live. 12-year old Sarah Bagley comes from Kent where, fortunately, the NHS is willing to fund treatment. Her response to the drug has been nothing short of miraculous, as her mother explains, ’Sarah definitely looks and feels better. She’s more energetic and alert and she’s even put on a few pounds. She’s had loads of treatments but her doctors told her Enbrel was the last resort.’ Wheelchair bound since she was a toddler, Sarah can even manage to walk between classes at school since she has been on the treatment.

A consultant rheumatologist from University College Hospital in London points out the main advantage of the new drug, ’By homing in on a particular area of the immune system the therapy has a huge advantage over more conventional drugs that go for a blanket suppression of the system. Patients on Enbrel do not develop the sickness that immuno-suppressant drugs cause. I see patients who come from may different health authorities and only about half say they can have the drug. It is unacceptable.’

The Arthritis Research Campaign, which has helped develop Enbrel, is calling for the government to ensure everyone who needs the drug can receive it. The drug comes up for review at the end of the year by the National Institute for Clinical Excellence, an government operation set up specifically to overcome the problem of ‘postcode prescribing.’

Arthritis Research Campaign: 01246 558033

www.arc.org.uk

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